Rare Disorders

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PR: 7

NORD - National Organization for Rare Disorders - http://www.rarediseases.org/

Comprehensive list of rare diseases, disorders and related information. - Read more

PR: 7

Orpha.net - Rare Diseases - http://www.orpha.net/

Multilingual site accredited by Health On Net Foundation. Provides list of rare diseases and disorders as well as list of orphan drugs. - Read more

PR: 6

Genetic and Rare Health Conditions Information - http://www.kumc.edu/gec/support/

Includes alphabetical listing and resources on genetic and rare health conditions. From the University of Kansas Medical Center. - Read more

PR: 5

Rare Share Org - http://www.rareshare.org/

Community of people affected by various rare disorders. - Read more

PR: 4

Rare Diseases Information - http://www.dmoz.org/Health/Conditions_and_Diseases/Rare_Disorders/

A comprehensive collection of links to various rare disorders. - Read more

PR: 4

Acute Intermittent Porphyria - Panhematin - http://aiporphyria.com/

Includes information for patients as well as physicians about symptoms and possible treatment option for acute intermittent porphyria which is a rare genetic disorder. (Manufacturer's site - Panhematin is a registered trademark of Lundbeck Inc.) - Read more

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